{"id":48718,"date":"2024-05-31T10:18:21","date_gmt":"2024-05-31T13:18:21","guid":{"rendered":"https:\/\/academiadepacientes.com.br\/?p=48718"},"modified":"2026-02-18T12:40:25","modified_gmt":"2026-02-18T15:40:25","slug":"associacoes-ajudam-pacientes-com-doencas-raras-durante-enchentes-no-rs","status":"publish","type":"post","link":"https:\/\/academiadepacientes.com.br\/?p=48718","title":{"rendered":"Associa\u00e7\u00f5es Ajudam Pacientes com Doen\u00e7as Raras Durante Enchentes no RS"},"content":{"rendered":"\n<p>\ud83d\udca7 As associa\u00e7\u00f5es est\u00e3o auxiliando pacientes com doen\u00e7as raras a enfrentar os desafios impostos pelas enchentes no Rio Grande do Sul.<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Por que isso importa:<\/strong> A comunica\u00e7\u00e3o ineficaz entre \u00f3rg\u00e3os p\u00fablicos e pacientes compromete o acesso a medicamentos e equipamentos essenciais, agravando a sa\u00fade dos afetados.<\/li>\n<\/ul>\n\n\n\n<p>\ud83e\udde0 <strong>O que est\u00e1 acontecendo:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Associa\u00e7\u00f5es como Agapem-RS e Agadim est\u00e3o conectando pacientes a m\u00e9dicos volunt\u00e1rios e doando itens de higiene.<\/li>\n\n\n\n<li>Dificuldades incluem locomo\u00e7\u00e3o, acesso a medicamentos caros e espec\u00edficos, e falta de comunica\u00e7\u00e3o com \u00f3rg\u00e3os p\u00fablicos.<\/li>\n<\/ul>\n\n\n\n<p>\ud83d\udd0d <strong>Nas Entrelinhas:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Falta de articula\u00e7\u00e3o estatal deixa pacientes sem informa\u00e7\u00f5es cr\u00edticas e medicamentos.<\/li>\n\n\n\n<li>Infraestrutura danificada complica ainda mais o atendimento necess\u00e1rio.<\/li>\n<\/ul>\n\n\n\n<p>\ud83c\udfc3 <strong>Resumindo:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Associa\u00e7\u00f5es preenchem lacunas deixadas pelo Estado, garantindo medicamentos e suporte essencial.<\/li>\n\n\n\n<li>A Agadim planeja criar um centro de atendimento emergencial para futuras crises.<\/li>\n<\/ul>\n\n\n\n<p>\ud83d\uddbc\ufe0f <strong>O quadro geral:<\/strong> Associa\u00e7\u00f5es est\u00e3o se mobilizando para suprir necessidades emergenciais de pacientes com doen\u00e7as raras, destacando a import\u00e2ncia de pol\u00edticas espec\u00edficas e melhor articula\u00e7\u00e3o governamental em momentos de crise.<\/p>\n\n\n\n<p>\ud83d\udcad <strong>Nossa opini\u00e3o:<\/strong> A iniciativa das associa\u00e7\u00f5es \u00e9 vital, mas a necessidade de pol\u00edticas p\u00fablicas mais eficazes \u00e9 evidente.<\/p>\n\n\n\n<figure class=\"wp-block-pullquote has-accent-2-background-color has-background has-medium-font-size\"><blockquote><p><strong>O que a Coordena\u00e7\u00e3o de Doen\u00e7as Raras do Minist\u00e9rio da Sa\u00fade est\u00e1 fazendo para ajudar as pessoas com doen\u00e7as raras no RS?<\/strong><\/p><\/blockquote><\/figure>\n\n\n\n<h2 class=\"wp-block-heading\"><a href=\"https:\/\/www.jornaldocomercio.com\/geral\/2024\/05\/1156526-pessoas-com-deficiencia-e-doencas-raras-enfrentam-dificuldades-durante-cheias-no-rs.html\" target=\"_blank\" rel=\"noopener\" title=\"\">Clique aqui para saber mais<\/a><\/h2>\n","protected":false},"excerpt":{"rendered":"<p>Associa\u00e7\u00f5es ajudam pacientes com doen\u00e7as raras no RS durante enchentes, garantindo acesso a medicamentos e suporte essencial, destacando a necessidade de melhor articula\u00e7\u00e3o governamental.<\/p>\n","protected":false},"author":2,"featured_media":48719,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_uag_custom_page_level_css":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[267,92],"tags":[],"class_list":["post-48718","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-arquivos-de-transicao","category-noticias","infinite-scroll-item","resize-featured-image"],"aioseo_notices":[],"uagb_featured_image_src":{"full":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:auto\/h:auto\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2024\/05\/reclame-rs.png",1080,1080,false],"thumbnail":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:150\/h:150\/q:mauto\/rt:fill\/g:ce\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2024\/05\/reclame-rs.png",150,150,true],"medium":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:300\/h:300\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2024\/05\/reclame-rs.png",300,300,true],"medium_large":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:768\/h:768\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2024\/05\/reclame-rs.png",768,768,true],"large":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:1024\/h:1024\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2024\/05\/reclame-rs.png",1024,1024,true],"1536x1536":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:auto\/h:auto\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2024\/05\/reclame-rs.png",1080,1080,false],"2048x2048":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:auto\/h:auto\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2024\/05\/reclame-rs.png",1080,1080,false],"mailpoet_newsletter_max":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:auto\/h:auto\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2024\/05\/reclame-rs.png",1080,1080,false]},"uagb_author_info":{"display_name":"Cl\u00e1udio Cordovil","author_link":"https:\/\/academiadepacientes.com.br\/?author=2"},"uagb_comment_info":1,"uagb_excerpt":"Associa\u00e7\u00f5es ajudam pacientes com doen\u00e7as raras no RS durante enchentes, garantindo acesso a medicamentos e suporte essencial, destacando a necessidade de melhor articula\u00e7\u00e3o governamental.","_links":{"self":[{"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=\/wp\/v2\/posts\/48718","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=48718"}],"version-history":[{"count":2,"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=\/wp\/v2\/posts\/48718\/revisions"}],"predecessor-version":[{"id":48722,"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=\/wp\/v2\/posts\/48718\/revisions\/48722"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=\/wp\/v2\/media\/48719"}],"wp:attachment":[{"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=48718"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=48718"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/academiadepacientes.com.br\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=48718"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}