{"id":45981,"date":"2023-08-03T19:46:14","date_gmt":"2023-08-03T22:46:14","guid":{"rendered":"https:\/\/academiadepacientes.com.br\/?p=45981"},"modified":"2023-08-03T20:16:17","modified_gmt":"2023-08-03T23:16:17","slug":"conitec-recomenda-a-incorporacao-do-trikafta-ao-sus","status":"publish","type":"post","link":"https:\/\/academiadepacientes.com.br\/?p=45981","title":{"rendered":"Conitec recomenda a incorpora\u00e7\u00e3o do Trikafta ao SUS"},"content":{"rendered":"\n<div class=\"wp-block-uagb-blockquote uagb-block-cf3326f3 uagb-blockquote__skin-border uagb-blockquote__with-tweet uagb-blockquote__tweet-style-classic uagb-blockquote__tweet-icon_text uagb-blockquote__stack-img-none\"><blockquote class=\"uagb-blockquote\"><div class=\"uagb-blockquote__content\"><strong>Hoje \u00e9 um dia hist\u00f3rico para a fibrose c\u00edstica (FC) no Brasil. <\/strong><br><br><strong>O dia em que a Conitec, Comiss\u00e3o Nacional de Incorpora\u00e7\u00e3o de Tecnologias ao SUS, recomendou a incorpora\u00e7\u00e3o do Trikafta aos tratamentos oferecidos pelo Sistema \u00danico de Sa\u00fade. <br><br>Esse tratamento revolucion\u00e1rio que j\u00e1 vem mudando a vida do nosso filho e consequentemente da nossa fam\u00edlia, agora estar\u00e1 acess\u00edvel para outras centenas de pessoas com FC. <br><br>O nosso Sistema \u00danico de Sa\u00fade com essa decis\u00e3o demonstra que considera a vida dessas pessoas importante o que para n\u00f3s sempre pareceu \u00f3bvio. Agrade\u00e7o a cada um que contribui para que esse sonho se tornasse poss\u00edvel, concreto, palp\u00e1vel. <br><br>H\u00e1 18 anos, 11 meses e 11 dias eu e Marise esper\u00e1vamos por esse dia. Quando meu filho nasceu, nem se falava nos moduladores da prote\u00edna CFTR. Mas houve pesquisadores e m\u00e9dicos que acreditaram que seria poss\u00edvel um tratamento que n\u00e3o fosse s\u00f3 protelat\u00f3rio, mas uma resposta definitiva aos sofrimentos di\u00e1rios de milhares de pacientes pelo mundo. <br><br>Mas, mesmo n\u00e3o havendo nada parecido naquela \u00e9poca, uma coisa eu sabia: que a resposta viria da Ci\u00eancia e que seria necess\u00e1rio muito esfor\u00e7o, muita mobiliza\u00e7\u00e3o para fazer um tratamento assim acess\u00edvel a todos. <br><br>Agrade\u00e7o a cada uma dessas pessoas. N\u00e3o vou nome\u00e1-las porque cada um sabe o que fez. N\u00e3o ter\u00edamos alcan\u00e7ado esse resultado sem esse esfor\u00e7o COLETIVO. <br><br>Por \u00faltimo n\u00e3o posso deixar de agradecer a todos que lutaram o bom combate sem ver o fim dessa batalha. Essa vit\u00f3ria tamb\u00e9m \u00e9 de voc\u00eas. <\/strong><br><br><strong>Gratid\u00e3o.<\/strong><br><br><\/div><footer><div class=\"uagb-blockquote__author-wrap uagb-blockquote__author-at-left\"><cite class=\"uagb-blockquote__author\">Cristiano Silveira, pai de Pedro, que convive com a Fibrose C\u00edstica. <\/cite><\/div><a href=\"\/\" class=\"uagb-blockquote__tweet-button\" target=\"_blank\" rel=\"noopener noreferrer\"><svg width=\"20\" height=\"20\" viewBox=\"0 0 512 512\"><path d=\"M459.37 151.716c.325 4.548.325 9.097.325 13.645 0 138.72-105.583 298.558-298.558 298.558-59.452 0-114.68-17.219-161.137-47.106 8.447.974 16.568 1.299 25.34 1.299 49.055 0 94.213-16.568 130.274-44.832-46.132-.975-84.792-31.188-98.112-72.772 6.498.974 12.995 1.624 19.818 1.624 9.421 0 18.843-1.3 27.614-3.573-48.081-9.747-84.143-51.98-84.143-102.985v-1.299c13.969 7.797 30.214 12.67 47.431 13.319-28.264-18.843-46.781-51.005-46.781-87.391 0-19.492 5.197-37.36 14.294-52.954 51.655 63.675 129.3 105.258 216.365 109.807-1.624-7.797-2.599-15.918-2.599-24.04 0-57.828 46.782-104.934 104.934-104.934 30.213 0 57.502 12.67 76.67 33.137 23.715-4.548 46.456-13.32 66.599-25.34-7.798 24.366-24.366 44.833-46.132 57.827 21.117-2.273 41.584-8.122 60.426-16.243-14.292 20.791-32.161 39.308-52.628 54.253z\"><\/path><\/svg>Tweet<\/a><\/footer><\/blockquote><\/div>\n\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div\n    class='wp-block-pdfp-pdf-poster  alignnone'\n    id='block-2'\n    data-attributes='{&quot;uniqueId&quot;:&quot;pdfpac261203&quot;,&quot;file&quot;:&quot;https:\\\/\\\/academiadepacientes.com.br\\\/storage\\\/2023\\\/08\\\/Pauta121ReuniaoMedicamentos-1.pdf&quot;,&quot;title&quot;:&quot;Pauta da 121\\u00aa Reuni\\u00e3o Ordin\\u00e1ria da Conitec&quot;,&quot;print&quot;:true,&quot;downloadButton&quot;:true,&quot;downloadButtonText&quot;:&quot;Baixar o 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PDF&quot;,&quot;btnStyle&quot;:{&quot;background&quot;:&quot;#2271b1&quot;,&quot;color&quot;:&quot;#fff&quot;,&quot;fontSize&quot;:&quot;16px&quot;,&quot;padding&quot;:{&quot;top&quot;:10,&quot;right&quot;:20,&quot;bottom&quot;:10,&quot;left&quot;:10}}},&quot;popupBtnStyle&quot;:{&quot;background&quot;:&quot;#2271b1&quot;,&quot;color&quot;:&quot;#fff&quot;,&quot;padding&quot;:{&quot;top&quot;:10,&quot;right&quot;:20,&quot;bottom&quot;:10,&quot;left&quot;:10}},&quot;popupBtnText&quot;:&quot;Open Document&quot;,&quot;socialShare&quot;:{&quot;enabled&quot;:false,&quot;facebook&quot;:true,&quot;twitter&quot;:true,&quot;linkedin&quot;:true,&quot;pinterest&quot;:true,&quot;position&quot;:&quot;top&quot;},&quot;isPremium&quot;:true}'\n    style=\"text-align: left\">\n    \n        <iframe title=\"Pauta da 121\u00aa Reuni\u00e3o Ordin\u00e1ria da Conitec\" style=\"border:0;\" width=\"100%\" height=\"800px\" class=\"pdfp_unsupported_frame\" src=\"\/\/docs.google.com\/gview?embedded=true&#038;url=https:\/\/academiadepacientes.com.br\/storage\/2023\/08\/Pauta121ReuniaoMedicamentos-1.pdf\"><\/iframe>\n\n    <\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Leia tamb\u00e9m<\/h2>\n\n\n\n<p><a href=\"Luta de doentes raros no Brasil atinge novo patamar\" target=\"_blank\" rel=\"noopener\" title=\"\">Trikafta: Luta de doentes raros no Brasil atinge novo patamar<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Cristiano Silveira, pai de Pedro, que tem fibrose c\u00edstica, escreve um depoimento emocionado pela vit\u00f3ria representada pela incorpora\u00e7\u00e3o do Trikafta ao SUS<\/p>\n","protected":false},"author":2,"featured_media":2591,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_uag_custom_page_level_css":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[92],"tags":[],"class_list":["post-45981","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","infinite-scroll-item","resize-featured-image"],"aioseo_notices":[],"uagb_featured_image_src":{"full":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:auto\/h:auto\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2017\/08\/cristiano-e1503498853992-768x619-1.jpg",768,619,false],"thumbnail":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:150\/h:150\/q:mauto\/rt:fill\/g:ce\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2017\/08\/cristiano-e1503498853992-768x619-1.jpg",150,150,true],"medium":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:300\/h:242\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2017\/08\/cristiano-e1503498853992-768x619-1.jpg",300,242,true],"medium_large":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:auto\/h:auto\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2017\/08\/cristiano-e1503498853992-768x619-1.jpg",768,619,false],"large":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:auto\/h:auto\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2017\/08\/cristiano-e1503498853992-768x619-1.jpg",768,619,false],"1536x1536":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:auto\/h:auto\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2017\/08\/cristiano-e1503498853992-768x619-1.jpg",768,619,false],"2048x2048":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:auto\/h:auto\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2017\/08\/cristiano-e1503498853992-768x619-1.jpg",768,619,false],"mailpoet_newsletter_max":["https:\/\/mlzfzsux7b5d.i.optimole.com\/w:auto\/h:auto\/q:mauto\/f:best\/https:\/\/academiadepacientes.com.br\/wp-content\/uploads\/2017\/08\/cristiano-e1503498853992-768x619-1.jpg",768,619,false]},"uagb_author_info":{"display_name":"Cristiano 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